We are very excited to announce the official launch of Vitiligo Patient Views: The First Global Vitiligo Patient and Caregiver Experience Survey!
There is currently a lack of robust global evidence capturing the real experiences of people living with vitiligo and caregivers. Vitiligo Patient Views was developed in collaboration with global experts and scientific societies to help address this gap and strengthen advocacy efforts for the global vitiligo community.
The survey is available globally in 16 languages, helping ensure that vitiligo communities around the world can participate and be heard.
The findings from this survey will contribute towards a global whitepaper and peer-reviewed publication to help drive awareness, advocacy, research, and policy change for vitiligo globally.
The survey takes 20–30 minutes to complete and is open to:
• Adults (18+) living with vitiligo, or young people aged 12–17 with caregiver consent
• Caregivers of a child under 18 living with vitiligo
This study has received a favourable opinion from the French Ethical Review Committee for the Protection of Persons – IDF VII decision n° 26.00422.000533
We want the survey to reach as many people as possible worldwide. The more responses we receive, the stronger our data, and the better our ability to drive advocacy and enact lasting change for the vitiligo community
We Need Your Support – Please help us by sharing the survey with your network.
Step 1: Repost today’s post from VIPOC channels.
- VIPOC Facebook: Click Here
- VIPOC Instagram: Click Here
- VIPOC LinkedIn: Click Here
- VIPOC TikTok: Click Here
- VIPOC X (Twitter): Click Here
Step 2: Post from your own channels:
1. Posts are available in 16 languages — please download here and share broadly with your networks
Please include this caption:
The first-of-its-kind global survey is live!
Vitiligo Patient Views is the first-of-its-kind global patient and caregiver experience survey, led by VIPOC and globally available in 16 languages. Its goal is simple: to capture the real, lived experiences of people with vitiligo and those who care for them, and transform that evidence into meaningful change
If you are a person living with vitiligo, or a caregiver of a child with vitiligo, we want to hear from you!
Take our global survey today: https://bit.ly/4etDKLW
#VitiligoPatientViews #Vitiligo #VIPOC
Please note:
- Should you require additional information for your communications, please let us know
- You may translate the caption into your own language, but please do not change the meaning
- Do not change logos, colours, layout, or QR codes on the visuals
- Always include the hashtags in the caption: #VitiligoPatientViews #VIPOC #Vitiligo
If you have any questions or require any additional information or supporting materials, please feel free to contact us at communication@vipoc.org. We would be happy to assist.
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