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VIPOC 2022 : Amsterdam

Yan Valle - Jean-Marie Meurant – Richard Huggins

Yan Valle – Jean-Marie Meurant – Richard Huggins

WHY TO BUILD VITILIGO STRATEGY AND ADVOCACY FOCUS? ROUND TABLE

Dr. Huggins (Global Vitiligo Foundation – USA), Jean-Marie Meurant (VIPOC), and Yan Valle (Vitiligo Research Foundation USA) introduced the following workshops, organized around this triangle: patients, research, and pharmaceutical industries, together in the search to cure and care for vitiligo patients.

From his doctor’s point of view, Dr Huggins underlined the importance of the emotional aspect of the disease and its impact on daily life, which is too often unknown or minimized by doctors and researchers. Yan Valle explained with an interesting map, the patient journey and difficulties faced by the patient and their families, and Jean-Marie Meurant recalled the importance of this necessary triangular partnership patients/research/pharmaceutical industries to get efficient treatments as well with local and regional health authorities to get sufficient reimbursement of vitiligo dedicated medicaments.

Annual General Meeting

ANNUAL GENERAL MEETING
President’s report as Treasurer’s report were unanimously agreed.
Vipoc’s Annual General Meeting closed the day with the election of 9 new members;
From left to right Jean-Marie Meurant (France), Maya
Tulpule (India), Georg Pliszewski (Germany), Jackie
Gardner (USA), Nicolle Maquignon (France),
Stephen Taylor (USA), Sharon King (USA), Catherine
Davidson (UK), missing Gaone Matewa(South Africa)

PHARMA-DAY – SATURDAY, 23RD APRIL

Representatives of Incyte and Pierre Fabre laboratories agreed to meet VIPOC patient leaders, and explained their work and their perception of a successful collaboration.
The clear and explanatory presentation of the representatives of Incyte Laboratory showed how evident is their interest in vitiligo, as well as their willingness to include patients in their studies. The remarks and expressed needs of the participants have particularly caught their attention. In the same way, we have deepened our knowledge of their fields of activity and their view on our expectations.
After a dynamic presentation, the representatives of the laboratory Pierre Fabre offered 2 brainstorming workshops, one focused on our individual experience, and our needs coming from different country or culture, the other, oriented more specifically on our expectation for addition to drug treatment (supplements, creams etc…)
The quality of attention and listening that these stakeholders have granted us, is the concrete proof of their will to collaborate actively with patient associations.

For more detailed info, have a look a our newsletter

Our purpose is to improve the daily life of vitiligo patients, provide them with the support and information they need, and promote understanding, recognition, work on cure and care for vitiligo by the medical community and society.

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