3rd VIPOC Conference – Amsterdam (The Netherlands)

Around the world, vitiligo patients are still waiting for recognition of their disease and the large impacts on their lives, even if some of them are trying to overcome the situation and stay with their difference.

Join us at the Conference

Join us at the conference to hear from VIPOC the latest in vitiligo research.

Become a member

Are you a Vitiligo Patient Leader? Join now to become a member.

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Entrance Fees

If you are a patient leader but not a member of VIPOC, you can register to become a member of VIPOC, and discounted membership fees will apply to you. There will be travel support for VIPOC members

VIPOC Patient Leader Member

One conference participant (single room) 290 €

  • 200 € (includes 3 days of access to conference rooms, break, lunch, Welcome dinner by Vitiligo.nl, Official VIPOC dinner and 2 dinners)
  • Accommodation for the conference participant
  • 90 € room for one person and breakfast, for 4 days and Amsterdam visit

One conference participant + one companion (double room) 440 €

  • Conference fee: 200 € (includes 3 days of access to conference rooms, break, lunch, Welcome dinner by Vitiligo.nl, Official VIPOC dinner and 2 dinners)
  • 240 € room and breakfast for a companion as well dinners for 4 days, and Amsterdam visit

Non-VIPOC Patient Leader Member

One conference participant (single room) 350 €

  • 260 € (includes 3 days of access to conference rooms, break, lunch, Welcome dinner by Vitiligo.nl, Official VIPOC dinner and 2 dinners)
  • Accommodation for the conference participant
  • 90 € room for one person and breakfast, for 4 days and Amsterdam visit

One conference participant + one companion (double room) 500 €

  • Conference fee: 260 € (includes 3 days of access to conference rooms, break, lunch, Welcome dinner by Vitiligo.nl, Official VIPOC dinner and 2 dinners)
  • 240 € room and breakfast for a companion as well dinners for 4 days, and Amsterdam visit

Travel support for VIPOC members – one travel support per VIPOC member organization

  • Europe 300 €
  • America/Africa: 1000 €
  • Asia: 1100 €

Provisional Speakers for the Conference

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Nanja van Geel

Professor, Department of Dermatology

Nanja van Geel, is a dermatologist, who specialized in pigmentary disorders, working at Ghent University Hospital and an Associate Professor at the Ghent University in Belgium.
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Julien Seneschal

Department of Dermatology, Auto-immune and Inflammatory Skin Diseases Unit

Julien Seneschal, is Professor in Dermatology in the department of dermatology and paediatric dermatology at the university hospital in Bordeaux.
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Davinder Parsad

Professor Post Graduate Institute of Medical Education and Research (PGIMER)

Davinder Parsad (Professor Department of Dermatology Post Graduate Institute of Medical Education and Research (PGIMER) Chandigarh, India
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Jung Me Bae

Associate Professor, Department of Dermatology St. Vincent’s Hospital

Dr. Bae, Associate Professor, Department of Dermatology, St. Vincent’s Hospital College of Medicine, The Catholic University of Korea.
Amit G. Pandya

Amit G. Pandya

Staff Dermatologist Palo Alto Foundation Medical Group

Dr. Amit Pandya, MD is a dermatologist in Mountain View, CA. Dr. Pandya completed a residency at Sw Med Center
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Pf Khaled Ezzedine

MD, Dakar, Senegal

Pf Khaled Ezzedine is Qualifed in Dermatology, Brussels, Belgium, Master of sciences in Biology and Heath, Bordeaux, France, PhD in Epidemiology, Paris, France, Accreditation to supervise research, Bordeaux, France.

Giovanni Leone

Professor

Coordinatore Scientifico area Dermatologia Centro di Fotodermatologia e Cura della Vitiligine Italy

Provisional Programme for the Conference

Wednesday, April 20th - Welcome Day
12h00 :  Arrival, welcoming cocktail and dinner hosted by Vitiligo.nl, the Dutch Vitiligo Patient Association

19h00 : Welcome dinner by Vitiligo.nl

Thursday, April 21st – Patient leader’s day
9h00  :  Official opening

  • Paul Monteiro, Vitiligo.nl / Nicolle Maquignon, VIPOC

9h15  :  Round table

  • All VIPOC participants

9h45  :  Vitiligo presentations worldwide tour

  • Local presentation/information – 10 mn per country

11h00  :  Why to build vitiligo strategy and advocacy focus?

  • Jean-Marie Meurant, VIPOC/Yan Valle, VR Foundation/ Dr.Richard Huggins, Dermatologist

11h15  :  Regional focus working groups

  • All participants

12h00  :  Proposal’s summary and strategy definition

  • Working group leaders

12h30  :  Synthesis

  • Georg Pliszewski, VIPOC

12h45  :  Lunch time 

14h00  : Patient engagement at the European Medicines Agency

  • Maria Mavris EMA Patients and Consumers Liason

14h45  :  Q&A

  • All participants

15h15  :  VITAL study project presentation and Q&A

  • Dr. Nanja Van Geel

16h00  :  VITAL working groups

  • All participants

17h00  :  Break

17h15  :  VIPOC AGM and Board election

  • All VIPOC members/Jean-Marie Meurant/ Georg Pliszewski/Nicolle Maquignon/VIPOC board

18h30  :  Summary and closing of patient leader’s day

  • Paul Monteiro and Dutch representatives

19h00  :  Dinner

Our Patient Leader Day Sponsors

Friday April 22nd – Scientific Day

Speakers will be in or in remote mode per video conference. Each presentation will have a Q&A session to speakers

10h00 : Introduction program + Guidelines First Chapter (Introduction)

  • Pr Nanja Van Geel (Belgium) – Confirmed to speak Live

10h10 : Physiopathology of vitiligo

  • Pr Julien Seneschal (France) – Confirmed to speak Live

10h30 : Topical treatments

  • Dr Albert Wolkerstorfer (The Netherlands) – Confirmed to speak Live
  • Dr Jung Min Bae (Korea) – Confirmed to speak Online

10h50 : Phototherapy

  • Dr Giovanni Leone (Italy) – Confirmed to speak Online
  • Dr Samia Esmat (Egypt) – Confirmed to speak Online

11h10 : Oral Steroids

  • Pr Markus Böhm (Germany) – Confirmed to speak live
  • Dr Marwa Abdallah (Egypt) – Confirmed to speak Online

11h30 : Systemic interventions

  • Pr Reinhart Speeckaert (Belgium) – Confirmed to speak Live
  • Dr Mauro Picardo (Italy) – Confirmed to speak Online

11h50 : Surgical interventions

  • Dr Iltefat Hamzavi (USA) – Confirmed to speak Online/Prerecorded
  • Pr Laila Benzekri (Marocco) – Confirmed to speak Online

LUNCH 12h10 – 13h30

13h30 – 14h30 : Worksop patient focus Group

14h30 : Depigmentation

  • Pr Khaled Ezzedine (France) – Confirmed to speak Live
  • Pr Caroline Le Poole (USA) – Confirmed to speak Online

14h50 : Other interventions

  • Pr Marcel Bekkenk (The Netherlands) – Confirmed to speak Live
  • Jean-Marie Meurant (France) – Confirmed to speak Live
  • Dr Viktoria Eleftheriadou (UK) – Confirmed to speak Live

15h20 : Innovative and emerging therapies

  • Dr Davinder Parsad (India) – Confirmed to speak Online
  • Dr Amit Pandya (USA) – Confirmed to speak Online

15h50 : Link to survey vitiligo guidelines part 1 open

BREAK 16h10 – 16h20

16h20 : Round table discussion

16h50 : Link to survey vitiligo guidelines part 2 open

17:30 : Closing

Scientific Day Sponsors

Saturday, April 23rd, 2022
Morning

  • Working groups with Pharma industries

Afternoon

  • Cultural understanding of arts (Rijksmuseum visit), visit of Amsterdam

Evening

  • Official VIPOC conference closing dinner
VIPOC conference Attendees
  • VIPOC members – Patient leaders, representing 14 nations
  • Patient leaders from around the world willing to join a global project for vitiligo patients
  • VIPOC
  • Researchers
  • Dermatologists
  • Pharma industries representatives
  • Journalists interesting in Vitiligo (patients organizations, research …)
Download the Conference Document

Hosting: Hotel and conference rooms close to downtown Amsterdam

Contact: contact@vipoc.org  –Technical support: www.vitiligo.nl and www.vipoc.org