About L’Association française du vitiligo
Founded in December 1991, L’Association Française du Vitiligo (AFV) is a national non-profit organization in France dedicated to supporting people living with vitiligo and advocating for their rights. Led entirely by volunteers many of whom are patients themselves or relatives of those affected the Association works tirelessly to represent and defend individuals with vitiligo in both public and private spheres.
AFV’s mission is grounded in providing moral support, attentive listening, and accurate, up-to-date information about vitiligo, including associated conditions and the latest scientific research. The Association actively raises public awareness of the disease and its psychological impact, while engaging with official institutions to strengthen the legitimacy of patients’ care pathways. It is also committed to stimulating and funding scientific research, and to fostering international collaboration among patient associations, researchers, and medical professionals worldwide.
Key activities include practical and emotional support through corrective makeup workshops, “Well-being with Vitiligo” days, and dedicated sharing groups. AFV organizes the Annual Vitiligo Meeting (Rencontres Annuelles du Vitiligo), where members engage directly with researchers and doctors. The Association also participates in national and international conferences, symposia, and its own “Tour de France” outreach program.
Guided by a Board of Directors chaired by Ms. Martine Carré and supported by a Scientific Committee, AFV ensures its work is informed by both lived experience and medical expertise. Its communication channels include newsletters, an active social media presence, a YouTube channel, and a dedicated hotline, ensuring patients and the public have access to trusted resources.
As a proud member of the Vitiligo International Patient Organizations Committee (VIPOC), L’Association Française du Vitiligo continues to advocate for improved care, greater awareness, and global solidarity in the pursuit of a cure.
ASSOCIATION FRANCAISE DU VIILIGO IS a MEMBER OF
